Katie only lasted about 8 hours on C-pap. At about 9 tonight, they had to put the breathing tube back in. She was having to work too hard to breathe on her own. We're pretty disappointed about this. We felt like the C-pap let us see the light at the end of the tunnel...if she can move toward breating on her own, then we can work on feeding, then go home. I know setbacks like these are "expected" and "common to babies like these", but that really doesn't help. She's been on a vent. for over a month now. Before they removed the tube, they told us how the ventilators damage the lung tissue over time, and worsen her lung disease. Now she's back on it. I'm tired of only getting to hold her for an hour at a time on some days, and I'm tired of having to see her through a plastic box. I still have not heard her cry, or make any noise. I hate sitting there listening to the alarms go off, because I can't do anything to fix it, yet when I'm not there, I feel guilty. We started working on Katie's room this week in anticipation of her coming home at some point, but now it just upsets me to even see it. I feel pretty useless. I sit up at the hospital all day, I don't really do any housework anymore, and I don't know what I'm going to do to earn money next year. I was hoping to find a "work from home" type of thing, but I either don't have the skills/experience needed, or the Internet stuff is a scam. I'm trying hard to be patient and believe everything will work out, it's just hard sometimes.